Friday, February 22, 2013

The Saga Continues

I needed some headspace before I could blog about this.  Wednesday I was pretty upset, but tonight I'm feeling more positive.  

We learned at our last allergist appointment that there are at least two or three things going on with B right now.  #1-She is allergic to quite a few foods.  Eggs, Peanuts, Soy (and several other types of legumes), Dairy (mild), Strawberries, Tomatoes, and Citrus.  Mostly she breaks out into hives, but with some foods also has eczema, runny nose, swelling of the lips, and possibly some internal itching.  #2- For some reason she is having auto-immune reactions to a large number of other foods.  The symptoms are the same as an allergic reaction, but the cause is different.  Dr. V. says her auto-immune levels are high for someone her age.  I don't know what this will really mean in the long run.  This is huge, scary, gray, unknown territory for me.  #3- There is something going on with her gut, which may or may not be wheat related.  We/she will be seeing a GI to investigate the cause of her chronic constipation and the malabsorption of fats (both of which are still a daily issue).  Dr. V. basically passed the buck.  He says he doesn't think it is wheat.  Her blood work indicated a very, very mild reaction to wheat.  He says wheat intolerance or allergy would not be causing the constipation.  I still think wheat is the culprit, and I am very interested to see what the GI thinks.   

Right now, the game plan is to give her Zyrtec daily, and reintroduce the foods that her auto-immune system is reacting too, and continue to avoid the foods she is actually allergic to.  Yay for fruit!  He thinks the Zyrtec will help treat the auto-immune symptoms and allow her to get the nutrition she needs to be healthy.  We've got an Epi-Pen Jr. in case of an ana reaction to peanuts.  In 6 months we can do another trail with dairy.  In a year, we can try reintroducing some legumes- for now we have to avoid ALL legumes and lentils.  

So even though she hates liquid meds, we're doing the daily Zyrtec.  3 days in and so far she's taken it with minimal fuss.  Tonight she ate and enjoyed mango with no hives.  She had not previously eaten mango, so I thought it might be a good starting place.  I also offered her cooked carrots, which she put to her mouth, but did not ingest.  No hives, however, I don't consider it a real test since she didn't actually eat it.  

So, that's basically where we're at right now.  We see Dr. V again in 6 weeks, and have to wait til next week to get the referral from her pediatrician for the pediatric GI.  

2 comments:

  1. This must be so difficult for you to deal with. All this uncertainty and seeing your child in pain and not knowing what to do in addition would just kill me. *hugs* lady

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    1. Thanks, it's been a stressful few months. But she's gained 2 pounds in about 6 weeks, which is great. And the allergy meds seem to be helping significantly with the auto-immune reactions. We're still waiting on our referral for the GI doc though, I'm getting pretty anxious about it.

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